Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford "CoRDS"

Recruiting

Phase N/A Results N/A

Summary of Purpose

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and...

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Trial Milestones

The following dates are available for this trial. Trial information last updated on 28 September 2017.

1 Jul 2010 13 Feb 2013 1 Dec 2100 1 Dec 2100 1 Sep 2016 Unavailable
Start Date First Received 1st Completion Completion Verification Results

Trial Design

  • Observation: Case-Only
  • Perspective: Prospective
  • Sampling: Non-Probability Sample

Contacts