Quality of Life and Rehabilitation Pathway in Northern Norway and Denmark.

Recruiting

Phase N/A Results N/A

Trial Description

The aim of this study is to analyze and describe rehabilitation pathways of stroke patients in northern Norway and Denmark in relation to how patients describe their health-related quality of life one year post stroke.
The study will consist of 1) Translate, cross-cultural adapt and validate a questionnaire 2) Describe the level of quality of life and rehabilitation pathway in the two countries 3) In-depth interviews of a smaller group of patients for a more complex understanding
The study is part of a larger prospective observational multicenter-study of two patient cohorts with stroke.

Detailed Description

500 patients from Norway and 500 patients from Denmark are included in the national stroke-register datasets, and 250 patients from each country in the questionnaire-based datasets.
The questionnaire includes demographic data, SSQoL (-DK and -NO), HADS, EQ-5D, QOLIBRI-OS and additional questions about satisfaction on treatment and rehabilitation.
5-6 patients from each country will be selected for semi-structured interviews with both priori questions ans exploratory questions.
The mixing of methods will balance the goals of generality and complex understanding in how patients describe their quality of life and rehabilitation-chain.

Conditions

Trial Design

  • Observation: Cohort
  • Perspective: Prospective
  • Sampling: Non-Probability Sample

Trial Population

All patients with stroke

Outcomes

Type Measure Time Frame Safety Issue
Primary Quality of Life one year Yes

Sponsors