Multicenter Prospective Cohort of Informal Caregivers in Burgundy and Franche-Comté "ICE"


Phase N/A Results N/A

Eligibility Criteria

Patient :

Inclusion Criteria

- To be able to identify a principal caregiver via a specific questionnaire (if the patient is unable to identify himself his caregiver due to the disease, a self-designation form as a principal caregiver will be allow and propose)
- to accept to complete the questionnaire to designate the principal caregiver;
- To live in either Burgundy-Franche-Comte county;
- have been recently diagnosed at hospital or in private-sector for the following diseases: Local or metastatic cancer diagnosed less than 6 month (breast cancer-hormone sensitive- in first line chemotherapy treatment, hormone-sensitive prostate cancer or in metastatic recurrence after 3 years of remission, considered as a new case, colorectal cancer in first line chemotherapy treatment), a neuro-degenerative disease (Parkinson disease diagnosed less than 7 years, Alzheimer disease and similar diseases diagnosed less than 12 months and /or with a Mini Mental State Examination (MMSE)<24 and >10 (performed less than 3 mois)), Age-related Macular Degeneration,( geographic atrophy or neovascular, diagnosed less than 12 month with an acuity range between 2 and 6/10e, be at least 65 years old and have received less than 3 sessions of intravitreal injections (IVT)), cardiac disease (heart failure diagnosed less than 3 months), neuro-vascular disease (ischemic or hemorrhagic stroke with clinical evidence of post stroke lesions upper than 24 hours, diagnosed less than 6 months and with a Rankin's score inferior or equal to 2).

Exclusion Criteria

- previously diagnosed with another targeted disease and/or living in retirement home could not be included
Inclusion Criteria:
- to be a member of the patient's social environment (family, friend and neighbor);
- to be identify by the patient as the "principal caregiver" based on the designation questionnaire or to have complete the self-designation form as a principal caregiver;
- ≥ 18 years old;
- not be an employee of a healthcare organization;
- living in Burgundy-Franche-Comte;
- to be able to complete questionnaires,
Exclusion Criteria:
- to be under guardianship, curatorship or under the protection of justice