Evaluation of the Stroke Caregiver Education and Support Program "FICSS"

Completed

Phase N/A Results N/A

Trial Description

The study will be evaluating to a 4 week education and support program for stroke caregivers. The 4 week program will provide education, information, and strategies for dealing with areas that caregivers may find challenging in their caregiving role. The study will evaluate the effectiveness of the program to decrease the caregiver's stress, strain and burden, increase the caregiver's knowledge of strategies and community services and increase their role satisfaction as a stroke caregiver and quality of life two weeks after the program and 6 months after the program.

Detailed Description

The modules in the program are: 1) Program Introduction, sharing Caregiving Stories and an introduction to Self Management; 2) Community Connections; Session 3 and 4 are chosen by the participants during session 1 from 6 possible options: Communication in your relationship; Cognition, Memory and Personhood; Dealing with your Emotions; Managing your Stress; Changing roles in your relationships and How to be Caregiver Smart? The programs provides education, information and strategies to deal with the areas that caregivers struggle with as caregivers in order to help them feel better able to prepared to manage as caregivers. Also, the investigators also hope to develop some beginning understanding of when is the best time to provide the program to stroke caregivers to be most helpful to them in their caregiving role.

Conditions

Interventions

  • Stroke Caregiver Education and Support Program Behavioral
    Other Names: FICSS Program
    Intervention Desc: 4 week program offered weekly over a 4 week period. Each session is a 2 hour small group guided discussion on the topic area facilitated by 2 trained facilitators. The topics are: Program Introduction, sharing Caregiving Stories and an introduction to Self Management; Community Connections; Session 3 and 4 are chosen by the participants during session 1 from 6 possible options: Communication in your relationship; Cognition, Memory and Personhood; Dealing with your Emotions; Managing your Stress; Changing roles in your relationships and How to be Caregiver Smart?

Trial Design

  • Masking: Open Label
  • Purpose: Supportive Care
  • Intervention: Single Group Assignment

Outcomes

Type Measure Time Frame Safety Issue
Primary Change in Baseline Bakas Caregiving Outcome Scale at 2 Weeks and 6 Months post Intervention Baseline, 2 weeks and 6 months Post Intervention No
Secondary Change in Baseline Oberst Caregiving Burden Scale at 2 Weeks and 6 Months Post Intervention Baseline, 2 weeks and 6 months post intervention No
Secondary Open Ended Focus Group Interview to assess impact of program weeks and 6 months post intervention 2 weeks and 6 months post Intervention No
Secondary Caregiver Baseline/Stroke Survivor Baseline Questionnaire Baseline No

Sponsors